TY - JOUR
T1 - The lack of antiepileptic drugs and worsening of seizures among physically handicapped patients with epilepsy during the Great East Japan Earthquake
AU - Kobayashi, Satoru
AU - Endo, Wakaba
AU - Inui, Takehiko
AU - Wakusawa, Keisuke
AU - Tanaka, Soichiro
AU - Onuma, Akira
AU - Haginoya, Kazuhiro
N1 - Publisher Copyright:
© 2016 The Japanese Society of Child Neurology.
PY - 2016/8/1
Y1 - 2016/8/1
N2 - Background: Takuto Rehabilitation Center for Children is located in Sendai, the capital of the Miyagi prefecture, and faces the Pacific Ocean. The tsunami caused by the Great East Japan Earthquake resulted in tremendous damage to this region. Many physically handicapped patients with epilepsy who are treated at our hospital could not obtain medicine. We surveyed patients with epilepsy, using a questionnaire to identify the problems during the acute phase of the Great East Japan Earthquake. Methods: After the earthquake, we mailed questionnaires to physically handicapped patients with epilepsy who are treated and prescribed medications at our hospital, or to their parents. Results: A total of 161 respondents completed the questionnaire. Overall, 68.4% of patients had seven days or less of stockpiled medication when the earthquake initially struck, and 28.6% of patients had no medication or almost no medication during the acute phase after the earthquake. Six patients were forced to stop taking their medication and nine patients experienced a worsening of seizures. Most (93.6%) patients stated they require a stockpile of medication for more than seven days: 20 months after the earthquake, 76.9% patients a supply of drugs for more than seven days. Conclusions: We suggest that physically handicapped patients with epilepsy are recommended to prepare for natural disasters by stockpiling additional medication. Even if the stock of antiepileptic drugs is sufficient, stress could cause worsening of seizures. Specialized support is required after a disaster among physically handicapped patients with epilepsy.
AB - Background: Takuto Rehabilitation Center for Children is located in Sendai, the capital of the Miyagi prefecture, and faces the Pacific Ocean. The tsunami caused by the Great East Japan Earthquake resulted in tremendous damage to this region. Many physically handicapped patients with epilepsy who are treated at our hospital could not obtain medicine. We surveyed patients with epilepsy, using a questionnaire to identify the problems during the acute phase of the Great East Japan Earthquake. Methods: After the earthquake, we mailed questionnaires to physically handicapped patients with epilepsy who are treated and prescribed medications at our hospital, or to their parents. Results: A total of 161 respondents completed the questionnaire. Overall, 68.4% of patients had seven days or less of stockpiled medication when the earthquake initially struck, and 28.6% of patients had no medication or almost no medication during the acute phase after the earthquake. Six patients were forced to stop taking their medication and nine patients experienced a worsening of seizures. Most (93.6%) patients stated they require a stockpile of medication for more than seven days: 20 months after the earthquake, 76.9% patients a supply of drugs for more than seven days. Conclusions: We suggest that physically handicapped patients with epilepsy are recommended to prepare for natural disasters by stockpiling additional medication. Even if the stock of antiepileptic drugs is sufficient, stress could cause worsening of seizures. Specialized support is required after a disaster among physically handicapped patients with epilepsy.
KW - Epilepsy
KW - Physically handicapped patients
KW - Severe motor and intellectual disabilities
KW - The Great East Japan Earthquake
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U2 - 10.1016/j.braindev.2016.01.005
DO - 10.1016/j.braindev.2016.01.005
M3 - Article
AN - SCOPUS:84960154271
VL - 38
SP - 623
EP - 627
JO - Brain and Development
JF - Brain and Development
SN - 0387-7604
IS - 7
ER -