Survey on the current status of delivered informed consent for renal replacement therapy among patients with end-stage renal disease

Hirofumi Nakano, Shoji Koga, Hidetomo Nakamoto, Masaaki Nakayama, Makoto Hiramatsu, Ikuto Masakane

Research output: Contribution to journalReview articlepeer-review

4 Citations (Scopus)

Abstract

We conducted a survey on the adequacy of delivered informed consent (IC) among patients with endstage renal disease(ESRD) regarding the information provided on renal replacement therapies (RRT): Hemodialysis (HD), peritoneal dialysis (PD), and renal transplantation (RTx). A self-assessment style of questionnaire entitled "Informed consent for the selection of dialysis therapy modality" was prepared for evaluation, and the adequacy of IC was scored by 5 grades ranging from "excellent" to "bad". The questionnaire was sent to all the JSDT registered facilities (n = 3,484), and 480 centers replied (13.8%). Among these, 407 centers had patients introduced onto some form of RRT modality in the last 12 months. As to the adequacy of delivered IC for each modality, "excellent and good" status was reported as follows: 80.8% in HD, 49.8% in PD, and 32.5% in RTx, respectively. The major reason for "poor and bad" IC adequacy in PD and RTx, was "not available in the facility". By analyzing the facilities stratified by the clinical experiences of each modality in the past, poorly delivered IC for PD and RTx was revealed in centers lacking experience. Delivered information about RRT to ESRD patients may be biased in Japan. The findings of this study suggested that a lack of medical experience of the modality contributes to insufficient IC.

Original languageEnglish
Pages (from-to)658-663
Number of pages6
JournalJapanese Journal of Nephrology
Volume48
Issue number7
Publication statusPublished - 2006 Nov 27

Keywords

  • Dialysis modality selection
  • Information disclosure
  • Informed consent
  • Questionnaire survey
  • Renal replacement therapy

ASJC Scopus subject areas

  • Nephrology

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