Preferences regarding end-of-life cancer care and associations with good-death concepts: A population-based survey in Japan

M. Sanjo, M. Miyashita, T. Morita, K. Hirai, M. Kawa, T. Akechi, Y. Uchitomi

Research output: Contribution to journalArticlepeer-review

72 Citations (Scopus)

Abstract

Background: The aims of this study were to clarify end-of-life cancer care preferences and associations with good-death concepts. Methods: The general population was sampled using a stratified random sampling method (N = 2548; response rate = 51%) and bereaved families from 12 certified palliative care units ('PCU-bereaved families') were surveyed (N = 513; response rate = 70%). The respondents reported their end-of-life care preferences and good-death concepts. Results: Regarding place of end-of-life care, approximately 50% of the general population preferred 'Home', while 73% of PCU-bereaved families preferred 'PCU'. The concepts of 'Maintaining hope and pleasure' and 'Dying in a favorite place' were associated with the preference for 'Home'. Regarding prognostic disclosure, approximately 50% of the participants preferred some level of negotiation with the physician. The concept of 'Control over the future' was associated with this preference. Regarding treatment of severe refractory physical distress, 75% of the general population and 85% of the PCU-bereaved families preferred palliative sedation therapy. The concepts of 'Physical and psychological comfort' and 'Unawareness of death' were associated with this preference. Conclusions: End-of-life care preferences were associated with good-death concepts. It would be useful for health-care workers to discuss patients' good-death concepts to support subsequent treatment decisions.

Original languageEnglish
Pages (from-to)1539-1547
Number of pages9
JournalAnnals of Oncology
Volume18
Issue number9
DOIs
Publication statusPublished - 2007 Sep

Keywords

  • Attitude towards death
  • Cross-sectional studies
  • Neoplasm
  • Palliative care

ASJC Scopus subject areas

  • Hematology
  • Oncology

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