Length of home hospice care, family-perceived timing of referrals, perceived quality of care, and quality of death and dying in terminally ill cancer patients who died at home

Akemi Yamagishi, Tatsuya Morita, Shohei Kawagoe, Megumi Shimizu, Taketoshi Ozawa, Emi An, Makoto Kobayakawa, Satoru Tsuneto, Yasuo Shima, Mitsunori Miyashita

Research output: Contribution to journalArticle

13 Citations (Scopus)

Abstract

Purpose: This study aims to clarify the length of home hospice care, family-perceived timing of referrals, and their effects on the family-perceived quality of care and quality of death and dying of terminally ill cancer patients who died at home and identify the determinants of perceived late referrals.

Methods: A multicenter questionnaire survey was conducted involving 1,052 family members of cancer patients who died at home supported by 15 home-based hospice services throughout Japan.

Conclusions: A significant number of bereaved families regarded the timing of referrals to home hospices as late, and the perceived timing was associated with the family-perceived quality of care and quality of death and dying. Systematic strategies to overcome the barriers related to perceived late referrals are necessary.

Results: A total of 693 responses were analyzed (effective response rate, 66 %). Patients received home-based hospice care for a median of 35.0 days, and 8.0 % received home hospice care for less than 1 week. While 1.5 % of the families reported the timing of referrals as early, 42 % reported the timing as late or too late. The families of patients with a length of care of less than 4 weeks were more likely to regard the timing of referrals as late or too late. The patients of family members who regarded the timing of referrals as late or too late had a significantly lower perceived quality of care (effect size, 0.18; P = 0.039) and lower quality of death and dying (effect size, 0.15, P = 0.063). Independent determinants of higher likelihoods of perceived late referrals included: frequent visits to emergency departments, patient being unprepared for worsening condition, and patient having concerns about relationship with new doctor. Discharge nurse availability was independently associated with lower likelihoods of perceived late referrals.

Original languageEnglish
Pages (from-to)491-499
Number of pages9
JournalSupportive Care in Cancer
Volume23
Issue number2
DOIs
Publication statusPublished - 2015

Keywords

  • Hospice
  • Length of stay
  • Quality of care
  • Quality of death and dying
  • Referral

ASJC Scopus subject areas

  • Oncology

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