Evaluation of care for leukemia and lymphoma patients during their last hospitalization from the perspective of the bereaved family

Yuki Shirai, Mitsunori Miyashita, Masako Kawa, Toru Motokura, Fumiaki Sano, Tetsuya Fukuda, Kazuo Oshimi, Keiko Kazuma

Research output: Contribution to journalArticle

4 Citations (Scopus)

Abstract

We aimed to evaluate care for leukemia and lymphoma patients during their last hospitalization from the perspective of the bereaved family. Questionnaires were sent to the bereaved family members of adult leukemia and lymphoma patients. We used the Care Evaluation Scale (CES) and asked the bereaved family members about care satisfaction and "good death" factors during the patient's last week of life or last admission period. We distributed 177 questionnaires and were able to analyze 103 (58.2%) responses. Compared with the results of a previous study of palliative care units in Japan, the CES scores were significantly lower in 9 out of 10 domains. Assessment of the "good death" components revealed that only 33% of respondents agreed that the patient had been relieved as far as possible of pain and physical distress during the last week of life. Only 21.4% of respondents agreed that the patient had been relieved as far as possible of psychological distress, and 57% of caregivers were not satisfied with the level of care. During the last hospitalizations of leukemia or lymphoma patients, their care was insufficient and a good death was not often achieved. Improvement of end-of-life care for leukemia and lymphoma patients is needed.

Original languageEnglish
Pages (from-to)93-99
Number of pages7
JournalLeukemia Research
Volume47
DOIs
Publication statusPublished - 2016 Aug 1

Keywords

  • Cancer
  • End of life care
  • Leukemia
  • Lymphoma
  • Oncology
  • Palliative care

ASJC Scopus subject areas

  • Hematology
  • Oncology
  • Cancer Research

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